The Way it is.
I think I have finally figured our how others (you) can partially, understand my experience with M.S.
If you do the following you may approximate How I live my day.
Prepare For walking 1. Attach a phone book (a big one) to the back of your left thigh just behind your knee.
2. Attach a ruler or other stiff straight object to your straight left leg.
3. Attach a deck of cards to the ball of your left foot. On the bottom of that put a piece of Velcro, a magnet, or gum, (anything that requires you to pull hard on your foot after each step.
4. Tie a string on the back of your belt. Loop the other end over your left toe so that each time you take a step the string pulls your toe back toward the floor.
5. This next one will take a little imagination. Put a hat on your head with metal rings floating around it like you might see in the drawing of electrons around an atom. Each ring has a weight on it which moves when your head tilts swinging the weight toward the lowest edge on the ring. The faster you move the more often their positions change. You must stand tall and keep all weights distributed evenly in order not to be thrown off balance. If you do get off balance don’t worry your brain kicks in quickly and will jet your arms out to each side. No worries your friend doesn’t need his voice. He uses his hands to work.
Everyone knows your situation they’ll understand. F.Y.I. I forgot to mention. No one else can see all your unique attachments.
Now that you are ready to be me put on your best smile, charge right in and watch for those painted lines! (They are much thicker than they appear)!
A few suggestions in general:
~ do not forget to stop at every bathroom in every building. If that is too in convenient, never cough or sneeze, or drink.
~ write down anything you want to remember & where the note is.
~ When asked a question feel free to say, “let me think about that; before you answer.
~ When reading, give yourself plenty of time & use a book mark to guide you eyes.
~ When key boarding remember to double check everything since you often hit caps lock instead of shift and spell checker doesn’t care. Soooo. Once again leave lots of time. Also take your time so your jumpy, spastic fingers don’t send you off to another application.
~ The key word in all cases is time. Count on living a long time you’ll need it!
If all this sounds overwhelming I apologize. I forgot all I need to do is get out of bed.
Wednesday, December 15, 2010
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